Heartbroken. That's what Bry and I have been feeling this past week. Where do I begin? My parents came to visit us for spring break while Bryan was in Peru for two weeks. We had a GREAT time with them. We were able to go to Nauvoo for a few days. It was such a great experience for me and the kids. It helped me remember all of the many blessings that we have and enjoy. The Sunday before my parents left I needed a sub for Kamryn's primary class and my mom said that she and my dad could sub. After we got home from church my dad asked me if I had seen Kamryn jerking her head back and her eyes rolling back in her head before. I hadn't. We watched her to see if it would happen again. It did. When I saw it I knew something was really wrong. I prayed that it was nothing serious but that "mom" feeling would not go away. I felt strongly that we needed to take her in to the doctors. They sent us straight to the hospital where she had an EEG test. Of course the jerking of her head and eyes rolling back stopped as soon as we went to the hospital. Thank goodness the neurologist felt that more testing needed to be done so they hooked her up to a mobile EEG for the next 48 hours. We didn't see anything more so we began to hope that it really was nothing. Then Thursday morning the Doctor called and said.. " I am so sorry I have very bad news..." She is having seizures. She did not want to tell me what kind over the phone, we go in tomorrow to find out all of the details and what we are dealing with. Unfortunately she started Friday with the eyes rolling back so we had to start the medication that night so we could start on the path to getting them controlled. Every time we see one (which is often) my stomach drops. The blessing is that Kamryn does not know she is having them. Also, it was great that my parents were here and extended their stay so they could stay with the boys while we were at the hospital. It is amazing to me how quickly life can change. We now face a whole new set of worries and concerns. How will is effect Kamryn? Will she and can she lead a "normal" life? She is an amazing girl. When Bryan and I sat here down to tell her what the doctor had said all she said was " Well, I guess Heavenly Father knew I could handle this so I guess I will be OK." WOW! Bryan and I hope to have the kind of faith that she has.
Heartbroken. That's what Bry and I have been feeling this past week. Where do I begin? My parents came to visit us for spring break while Bryan was in Peru for two weeks. We had a GREAT time with them. We were able to go to Nauvoo for a few days. It was such a great experience for me and the kids. It helped me remember all of the many blessings that we have and enjoy. The Sunday before my parents left I needed a sub for Kamryn's primary class and my mom said that she and my dad could sub. After we got home from church my dad asked me if I had seen Kamryn jerking her head back and her eyes rolling back in her head before. I hadn't. We watched her to see if it would happen again. It did. When I saw it I knew something was really wrong. I prayed that it was nothing serious but that "mom" feeling would not go away. I felt strongly that we needed to take her in to the doctors. They sent us straight to the hospital where she had an EEG test. Of course the jerking of her head and eyes rolling back stopped as soon as we went to the hospital. Thank goodness the neurologist felt that more testing needed to be done so they hooked her up to a mobile EEG for the next 48 hours. We didn't see anything more so we began to hope that it really was nothing. Then Thursday morning the Doctor called and said.. " I am so sorry I have very bad news..." She is having seizures. She did not want to tell me what kind over the phone, we go in tomorrow to find out all of the details and what we are dealing with. Unfortunately she started Friday with the eyes rolling back so we had to start the medication that night so we could start on the path to getting them controlled. Every time we see one (which is often) my stomach drops. The blessing is that Kamryn does not know she is having them. Also, it was great that my parents were here and extended their stay so they could stay with the boys while we were at the hospital. It is amazing to me how quickly life can change. We now face a whole new set of worries and concerns. How will is effect Kamryn? Will she and can she lead a "normal" life? She is an amazing girl. When Bryan and I sat here down to tell her what the doctor had said all she said was " Well, I guess Heavenly Father knew I could handle this so I guess I will be OK." WOW! Bryan and I hope to have the kind of faith that she has.
8 comments:
MIndi I am so sorry! I hope Kamryn gets better. We will be praying for you.
I'm so sorry your little girl has to go through this. It sounds like she's got the right attitude, though! We will keep your family in our prayers. Love, The Peays
Been thinking of you guys since you called last week. Kamryn's faith is amazing and will be an inspiration to all. She has incredible parents who have been teaching her all along. We love you guys and will be praying for you!
Wow. I am so sorry. It is amazing how fast life can change. Please let me know you if you need any help with primary stuff while we are still here. More than happy to help.
i never saw what was under that hat. Wow! What a good attitude she has had through all of this!!
We have been thinking about you guys and were so grateful to be able to join in the family fast for Camryn. She is an amazing girl with a great attitude. We will continue to keep you guys in our prayers. I hope everything goes well at your doctors visit. We love you guys!
Love you Mindi! You are such a sweet Mom. We will pray for you guys too. I am sure you will be able to handle everything. What a blessing to catch it early and to have your parents there! Kamryn is a strong one!!! Take care!! Keep us posted. Love you!!!
Oh my goodness Mindi! Our prayers are with your whole family...I really hope that Kamryn will get better soon and that all your questions will be answered.
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