Just for the record.. that is root beer that they are drinking. This picture was taken in front of the Red Brick Store in Nauvoo. I love Harrisons face! We met with the doctor and she is awesome! Kamryn is having Absence seizures (petit mal seizures). Here is what the mayo clinic website says about them:Definition
By Mayo Clinic staffAbsence seizure — also known as petit mal seizure — involves a brief, sudden lapse of conscious activity. Occurring most often in children, an absence seizure may look like the person is merely staring into space for a few seconds.
Compared with other types of epileptic seizures, absence seizures appear mild. But that doesn't mean they can't be dangerous. Children with a history of absence seizure must be supervised carefully while swimming or bathing, because of the danger of drowning. Teens and adults may also be restricted from driving and other potentially hazardous activities.
Absence seizures can usually be controlled with anti-seizure medications. Many children outgrow absence seizures in their teen years, though some may eventually develop grand mal seizures.
So what does that mean for Kamryn? She takes anti-seizure medication everyday. ( 6 a day!) I was doing ok with things until I had to pick up her new, stronger medication and the pill bottle was/is huge! I hate the thought that she is dependent on meds but am so grateful that there is medication to help her. She goes in once a month for blood tests to check to make sure her liver is doing ok. She still can't ride a bike, or swim until they are under control. We have seen a huge decrease in the seizures and hopefully within the next week not see any at all. The doctor told us that these type of seizures hit in early childhood and then again between the the ages 9-10 -which happened with Kamryn. We still have to watch for grand mals but so far so good! We hope that she will be able to grow out of them in a few years. She is doing great! We feel blessed that she is doing so good and that there is medicine that can and does help her led a normal life! We are so grateful for all of our friends and families who have prayed and fasted on our behalf!
2 comments:
I'm so glad she is doing better! lame friend I 'am for not picking up the phone. Hope all is well and we still miss you all a ton.
What great news.
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